Background Overview Information:

• Reasons to write about us
• 1 page: Federal Government Costs
• Health Canada letter re FM/CFS/ME research funding
• Health Canada letter on Provincial coverage of care
• List: ME/CFS Outbreaks, a history
• 40 pages:   Federal Submission, nearly 100 groups together.
• 10 pages:   FM & CFS - Common misperceptions, responses
• Moral Support Letter booklet
• 4 pages:   FM & CFS in Canada, our overview: numbers, objectives, a 10 year old's story
• FM-CFS Canada brochure

Background Medical Information:

• 110 pages:   Chronic Fatigue Syndrome - Canadian Concensus 2003
• 120 pages:   Fibromyalgia - Canadian Concensus 2003
• 2005 Decima Survey on Chronic Pain
• Chronic Pain from the CBC in Flash format: a woman with FM
• See our NeuroScience page for more Microglia-Pain Neuron information
• "Pain really is all in the mind" - New Scientist, 2003
• FM-CFS Canada study of 4 Fibromyalgia Hospital Programs
• The Scientist: March 2005 focus on the medical problem of pain
• CMAJ : Chronic fatigue syndrome comes out of the closet
• US CDC - CFS - their definition
• CFS Recent Advances in Diagnosis and Treatment -- by David S. Bell, MD
• CDC - CFS Research Definition - full text
• The Prevalence of CFS: A Review of Efforts - Past and Present
• Useful treatments for fibromyalgia syndrome
• Intl Assn for the Study of Pain: Pain, Its Perception, and Pain Imaging
• 10 Leading Causes of Suicide, WHO
• Brain Scan Tech Revealing Chronic Pain Can Even Lead to Loss of Gray Matter

Formal, Legal, Milestones:

• USA's CFS costs equals $9 billion (excluding health care & disability insurance). 06/03
• Legal Precedent: Honda ordered to pay $500,000 to CFS patient (04-13-2005)
  The Landmark Honda Decision (49 pages - pdf)
• Chronic Fatigue Syndrome - Canadian Concensus 2003
• Fibromyalgia - Canadian Concensus 2003
• 2005 Federal Submission, nearly 100 groups together.
• 1999 Canadian Parliament notes FM & CFS
• 1999 Canadian Parliament notes FM & CFS, 2nd notation
• Legal Precedent: Exhausting Victory - Maclean's Magazine

Quotes:

• Quotes: patients, physicians, researchers, FM-CFS Canada
• 40 Personal Canadian Testimonials
• 100 Quotes from MP candidates,   Election 2004
• Provincial Health Ministers & Community Leaders show Moral Support
• May 12th FM & CFS/M.E. Awareness Day

FM-CFS Canada Media Materials:

• More FM & CFS story ideas for the media.
• A fictional story about the illness, written by Emily, a young Canadian who has CFS.
• 550 word 1st person story available, written by patient
• 1400 word story available, written by patient
• 30 second TV & Radio ad   (.mov)
• 12 minute educational video on FM, happy ending   (.MP4)
• National campaign's 2" x 6" bookmark
• FM-CFS Canada Info Blog (new)
• FM-CFS Canada on YouTube

Past FM-CFS Canada News Releases

• Ambassador Michael Wilson offers his moral support! Aug. 06
  
• FM-CFS Canada launches online Question and Answer sessions. Jul. 06)
  
• FM-CFS.ca translates 16,000 words to French, Jul. 06
  
• FM-CFS Canada surveys 800 patients: results, Jun. 06
  
• Supreme Court renders decision in Fidler v. Sun Life case
      FM-CFS Canada was there to listen to the Appeal.
  
• Ottawa Physician arranges expert seminar for Medical School, May 06
• May 12th - National Awareness Day
• May 12th - Senate Statement - Senator Keon
• Ontario's new billing code for FM & ME/CFS, Apr. 06
• Open Letter to Political Leaders, Jan. 06
• Neuropathic Pain Discovery, in Canada!, Dec. 05
      graphic:   the neuroscience of pain
• Stats Can data on FM & CFS/M.E., Oct. 05
• Legal Precedent: Honda ordered to pay $500,000 to CFS patient: April 13, 2005 (See decision document below.)
  
• Study: Negative affects on spousal health, Feb. 06
• Medical Post: Insider's Column: FM & CFS patients need, deserve better care, Oct. 2005
• Media Advisory : Private Health Care & Wait Times, Jun. 05
• May 12th Senate Statement, Senator Marjorie LaBreton
• May 11 2005 Press Release - Federal Government offers no help
• Health Crisis Advisory, May 05
• Good Cause Award winner announced, Sep. 04
• Good Cause Award shortlist includes FM-CFS Canada, Aug. 04
• Volunteer Patient Registry serves 1st Researcher: UBC, Jul. 2004
• Ontario Delists Medical Services, Jun. 04
• May 12th recognition day, 2004
• Ottawa Mayor & May 12th - May 04
• Mother's Day math, May 04
• National Coalition forms, Apr. 04
• Media Advisory - Apr. 04
• May 12th, 2003: UK Primes Funding for Multi-Disciplinary CFS Specialist Centres
• Breakthrough for Chronic Fatigue Syndrome in United Kingdom, Jan. 02:
• Historical Environmental Illness (EI) Bill Passes First Reading in the Parliament of Canada, Feb. 00:
• First day of National Environmental Illness Awareness Month, Oct. 98:

Selected Print Media Press Coverage

• A girl, with CFS with since age 12 - St Catharines Standard, July 31, 2006
• FM-CFS Canada's Q & A sessions featured, July 25, 2006
• Chronic Pain from the CBC in Flash format: a woman with FM
• Major Depression & Fibromyalgia, Labour Participation stats, Canada : Jan. 19, 2006
• Ottawa Sun 6 day series : October 13-20th, 2005
• Ottawa Citizen May 12th period : May 10th, 2005
• National Post - Rising insurance costs : March 6, 2005
• Medical Post: Insider's Column: Fibromyalgia and chronic fatigue patients need, deserve better care
• Calgary Herald: "Chronic fatigue syndrome slowly gaining recognition in Canada"
• CTV Calgary : Physical diseases often misdiagnosed
• The Medical Post: Sick and tired
• U.S. FDA report on Cox-2 pain medications
• CFS suicide ends up in UK court
• Ottawa Citizen letter, regarding suicide.
• Chronic Back Pain Is Associated with Decreased Brain Matter Density, is FM?
• Open Letter, to Dutch Ambassador, regarding M.E./CFS
• December 18, 2004: Sherry lights signal in Newfoundland
• August 24, 2004: Good Cause Award short-list announced
• October 20, 2003: Chronic-pain sufferers lose doctor
• September 9, 2003: Chronic pain sufferers left 'high and dry'
• October 21, 2002: Dining with Shining Divas
• October 2002: Making a Difference for People living with Fibromyalgia and Chronic Fatigue Syndrome.
• May 4, 1998: Exhausting Victory - Maclean's Magazine
• May 26, 1995: Insurance Company Loses - Lawyer's Weekly/font>
• July 19, 1998: 'Hard evidence' shows chronic fatigue syndrome is biologically based

Disclaimer:
The FM-CFS Canada (Compassion in Action) website contains general information only. A qualified healthcare professional should be consulted before making medical decisions. FM-CFS Canada makes every effort to ensure the accuracy and reliability of the information that appears on its website but cannot guarantee that it is error free or complete. FM-CFS Canada does not endorse any product, treatment or therapy; neither does it evaluate the quality of services operated by other organizations.