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Ressources De l'Information pour Patients

Ressources de l'information

« L'expression « encéphalomyélite myalgique » (EM) désigne un problème de santé présentement mieux connu au Québec sous le nom de « syndrome de fatigue chronique » (SFC). »

...de la site Association québécoise de l'encéphalomyélite myalgique

 

« La douleur (Fibromyalgie) est souvent décrite comme étant diffuse ou comme une sensation de brûlure de la tête aux pieds. La douleur peut être plus aiguë à certains moments. Elle peut également passer d'une partie du corps à une autre, se faisant normalement ressentir davantage dans les parties du corps les plus souvent utilisées. La douleur peut être suffisamment aiguë pour entraver les tâches quotidiennes ou n'être qu'un léger malaise selon le degré d'atteinte. »

...de la site de L’Association québécoise de la fibromyalgie.

La site de Fédération Québécoise de la Fibromyalgie, aussi avec groupes.

Fibromyalgie : Qu'est-ce que c'est ?
LA FIBROMYALGIE EN 2002: Par Pierre Arsenault, PhD. MD et Serge Marchand, PhD

Le Comité consultatif médical de FM-SFC Canada a passé en revue ces ressources pour les assurer sont utile, mais passer en revue svp, notre dislaimer ci-dessous.

 

Chronic Fatigue Syndrome Guidelines - The new 2003 Canadian Concensus

 

Fibromyalgia Guidelines - The new 2004 Canadian Concensus

 

 

Disability Guidelines, from the Canadian Guidelines.
Juste cette section, en anglais, du rapport de 130 pages ci-dessus.

 

Histoires canadiennes personnelles par des patients

 

Ressources de le gouvernement

 

Ressources de l'information en anglais

 

UK Resources:

The ME Association (UK)

  • The Symptoms and Diagnosis of ME/CFS
  • Prognosis
  • Treatments
  • Precipitating & Perpetuating Factors
  • ME/CFS - An Overview

    Action for M.E. (UK) - some of these have not been donated yet

  • Guidance on the management of CFS/M.E.
    This guide, based on the Chief Medical Officer's report, has been produced by the U.K.'s Action for M.E. to assist GPs in the assessment and management of patients with CFS/M.E.
  • M.E.   A Guide to the Symptoms, Cause, and Treatment
  • Your Child & M.E.
  • What causes M.E?
  • What are the symptoms?
  • Controlling symptoms
  • Guidance on seeing a private practitioner
  • Controlling symptoms

    Fibromyalgia Association UK

  • GPs leaflet by Fibromyalgia Assn UK
  • Who Cares?
  • Fibromyalgia Association UK - What is Fibromyalgia?
  • Exercise and Fibromyalgia
  • Children & Young People
  • Prevalence of fibromyalgia in London, Ontario
  • Free Yoga classes - online instruction & videos
  • Science of Fibromyalgia - for Physicians
  • Fibromyalgia Impact Questionnaire (FIQ)
  • The Expert Patients Programme - UK
  • Stanford Self-Management Programs
  • British Medical Journal - FM & Exercise
  • The Canadian Pain Society
  • NIAMS Fibromyalgia Program Assessment
  • Devin Starlanyl's site, with books
  • Hannah's site, Fighting M.E., a personal site.
  •  

    Dr. Devin Starlanyl

  • "Devin's Diagnostic" - FMS & CMP
  • The FMS/CMP definition page
  • Perpetuating Factors
  • New Test for FMS: Algotensiometry
  • 18 Medical Handouts for the Health Team - Devin Starlanyl
  • Fibromyalgia and Chronic Myofascial Pain: Keys to Diagnosis and Treatment
  • Information for Everyone on Your Health Care Team
  • Information for Cardiologists
  • Information for Endocrinologists
  • Information for Mental Health Care Professionals
  • Information for Ob./Gyn. Health Care Professionals
  • Information for Primary Care, Physiatrists and Rheumatologists
  • Information for Surgeons
  • Information for Pharmacists
  • Information for Neurologists
  • Information for Eye Care Professionals
  • Information for Dentists
  • Medications
  • Devin Starlanyl - Exercise Hints

     

    From immunesupport.com

  • Robert Bennett, M.D., on Treatment of Fibromyalgia in Detail
  • Understanding and Treating Chronic Fatigue Syndrome and Fibromyalgia By Leon Chaitow N.D., D.O., M.R.O.
  • Medications for Chronic Fatigue Syndrome
  • Charles Lapp, M.D., on the Effective Treatment of Chronic Fatigue Syndrome and Fibromyalgia
  • Kent Holtorf, M.D., on Effective Treatment of Chronic Fatigue Syndrome and Fibromyalgia

     

    And many other valuable sources

  • Useful treatments for fibromyalgia syndrome (JAMA 2004)
  • FIBROpedia: dictionary created by participants in alt.med.fibromyalgia.
  • FIBROMYALGIA: IT'S A PERSONAL JOURNEY, By David Saul, M.D.
  • How to deal with Stress - FamilyDoctor.org
  • Men with Fibromyalgia - a site meant for men.
  • Maintaining a Positive Attitude: Ten Strategies
  • Nightingale Research Foundation - various articles on CFS
  • Colorado Fibromyalgia Research and Information Library
  • MARRTC - Missouri - FM site - Provides a good ranking of other sites.
  • The Oregon Fibromyalgia Foundation - a useful site
  • The American Association for Chronic Fatigue Syndrome
  • Centre for Disease Control (US)
  • Patient Pain Record Chart
  • Fibromyalgia Impact Questionnaire (FIQ)
  • OHSU Fibromyalgia First Visit Questionnaire
  • Science of Fibromyalgia - for Physicians
  • A Physician's Guide to Fibromyalgia Syndrome
  • A Patient's Frequently Asked Questions about Fibromyalgia
  • Diagram - FM Tender Points
  • Dr. Cheney's Basic Treatment Plan for Chronic Fatigue Syndrome
  • US Center for Disease Control - CFS information
  • US CDC - CFS - their definition
  • Chronic fatigue syndrome information for medical doctors
  • CFS treatment info for medical doctors
  • CFS Recent Advances in Diagnosis and Treatment -- by David S. Bell, MD
  • CDC - CFS Research Definition - full text
  • The Prevalence of CFS: A Review of Efforts --Past and Present

     

    Other Important Organisations

  • Self-Help Group Resource Center
  • The North American Chronic Pain Association of Canada
  • The Chronic Pain Association of Canada
  • A Report of the CFS/ME Working Group (UK Govt.)
  • The American Chronic Pain Association
  • The International Association for the Study of Pain
  • Institute for the Study and Treatment of Pain
  • Toronto Western Hospital - Musculoskeletal pain
  • Wasser Pain Management Centre at Mount Sinai
  • Centre for the Study of Pain at the University of Toronto
  • Pain Research & Management - Canadian Pain Society journal

     

    Journals

  • Journal of Chronic Fatigue Syndrome
  • The Journal of Rheumatology
  • Journal of Musculoskeletal Pain
  • Journal of Social Work in Long-Term Care

     

    Reference Sources

  • Fibromyalgia References from 1981 to March 2002
  • OHSU Fibromyalgia First Visit Questionnaire
  • Chronic fatigue syndrome information for medical doctors
  • A Review of different countries and the illness
  • RemedyFind - a non-commercial, non-sponsored, patient owned site that allows individuals and healthcare professionals to rate the effectiveness of the treatments they have used for specific illnesses
  • Fibromyalgia, Chronic Fatigue Syndrome & Other Medical Information - Lois Randall's web site
  • Stats Can page for Chronic Illnesses
  • MediConsult - a site listing many ME/CFS resources, includes A-Z Medical Directory, Medical Library and Discussion Groups
  • Chronic Fatigue Syndrome - many useful links to resources
  • The Cheney Clinic on Chronic Fatigue Syndrome
  • A Physician's Guide to Fibromyalgia Syndrome
  • U.S. National Library of MedicineMedlinePlus
  • Medline Fibromyalgia section
  • A randomized, controlled trial of exercise and education for individuals with fibromyalgia.
  • Dawn Jones - exercise videos for people with FM
  • The Chronic Syndrome Support Association
  • A USA law suit wins insurance for FM/CFS patient
  • A letter to people without the illness, from one who does.

     

    Various other useful resources:

  • Guidance on the management of CFS/M.E.
    This guide, based on the Chief Medical Officer's report, has been produced by the U.K.'s Action for M.E. to assist GPs in the assessment and management of patients with CFS/M.E.
  • M.E.   A Guide to the Symptoms, Cause, and Treatment
  • Your Child & M.E.
  • Canada's Food Guide to Healthy Eating
  • Practical Self Help Guide
    From the UK - Kings College Hospital
  • A Patient's Frequently Asked Questions about Fibromyalgia
  • The FIBROM-L Accueil Page - online discussion group on FM
  • Diagram - FM Tender Points
  • Fibromyalgia: The basicsWilliam S. Middleton VA Hospital, USA
  • Fibromyalgia: Helpful Behavioural ChangesWilliam S. Middleton VA Hospital, USA
  • Anatomical Drawings - The Merck Manual  

    Accueil
     

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