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FM-CFS Canada's 'Health Practitioner Awareness' initiatives:

1.   Diagnostic and Treatment Protocols, References for Medical Practitioners:
As late as Summer 2004, the two peer reviewed published Guidelines were not available free online and could cost nearly $100 to purchase and ship. FM-CFS Canada paid the US publisher Haworth Press to receive permission to share the two journal-form Protocols electronically with you, free, as below.

In late 2004 FM-CFS Canada met the College of Family Physicians of Canada and asked for a model for a short diagnostic and treatment overview. Such Overviews are now written, at our request, with the review of the expert panel. These inexpensive guides radically change the economics of sending information to doctors, and deliver the information in a concise format, as below.

Fibromyalgia Guidelines - The 2004 Canadian Concensus

Chronic Fatigue Syndrome Guidelines - The 2003 Canadian Concensus


 

2.   New Educational Materials
The goal is to create made-in-Canada, free, information for the relevant disciplines of Canadian health professionals. We're underway, with our thanks to the Canadian medical experts who responded to our call or volunteered.

FM-CFS Canada's Practitioner Guides  
  • Pharmacists & FMS:    
  • A Fibromyalgia guide for Pharmacists, May 2009
  • Pharmacists & ME/CFS:
  • A CFS guide for Pharmacists, May 2009
  • Psychiatrists & ME/CFS:    
  • Assessment and Treatment of Patients with ME/CFS
  • Nursing & FMS:        
  • Reviewed by a team of six Canadian pain nurses
  • Physiotherapy & FMS:    
  •  
    Click here for international research method results.

    Click here for another, the BMJ
    DRAFT GUIDES

     

  • Massage & FMS:        
  • Draft, two RMTs are reviewing this first draft.

     

    3.   Advancing medical school teaching time:
    FM-CFS Canada met the Ottawa U. Medical School Dean, Vice-Dean, Associate Dean, and a departmental Dean, enroute to an agreement to double the teaching time for FM & CFS at the University of Ottawa medical school. We've provided educational resources in print and electronic form to the professor.

    With the National ME/FM Action Network in a spring 2007 initiative, we distributed Clinical Overview guides for FM & ME/CFS to the remaining medical schools across Canada.
     

    4.   Delivering and Subsidizing Physician Education:
    In 2006 FM-CFS Canada mailed FM & ME/CFS Overviews to more than 1,000 doctors in the Ottawa region, and to many beyond.   FM-CFS Canada then covered half the cost of printing 14,000 more for distribution across Canada.
     

    5.   Tools & Expert Information Assembled for You

    FM Reference Material:

  • Notes from the 2006 US FM FAME conference
  • Useful treatments for fibromyalgia syndrome (JAMA 2004)
  • OHSU Fibromyalgia First Visit Questionnaire
  • Dr. Kevin White, Fibromyalgia: The Answer Is Blowin' in the Wind
  • Science of Fibromyalgia - for Physicians
  • Pain management resources

  • 18 Medical Handouts for various medical disciplines - Devin Starlanyl
    Which include:
  • Fibromyalgia and Chronic Myofascial Pain: Keys to Diagnosis and Treatment
  • Information for Everyone on Your Health Care Team
  • Information for Cardiologists
  • Information for Endocrinologists
  • Information for Mental Health Care Professionals
  • Information for Ob./Gyn. Health Care Professionals
  • Information for Primary Care, Physiatrists and Rheumatologists
  • Information for Surgeons
  • Information for Pharmacists
  • Information for Neurologists
  • Information for Eye Care Professionals
  • Information for Dentists
  • Medications
  • Perpetuating Factors - Devin Starlanyl
  • Devin Starlanyl - Exercise Hints
  • D. S. On Medications For Fibromyalgia

  • Fibromyalgia (FMS): Most Critical Causative and Treatment Factors
  • New - Neuroscience findings on neuropathic pain - December 15th, 2005
  • Mental Health Care Professionals
  • New - Major Depression, FM, Labour Force Participation, Canada - January 19th, 2006
  • Fibromyalgia and the Neuroscience Nurse’s Role
  • New Test for FMS: Algotensiometry
  • Fibromyalgia References from 1981 to March 2002
  • Toronto Western Hospital - Musculoskeletal pain
  • Fibromyalgia, Chronic Fatigue Syndrome & Other Medical Information - Lois Randall's web site
  • A Physician's Guide to Fibromyalgia Syndrome
  • A Patient's Frequently Asked Questions about Fibromyalgia
  • The FIBROM-L Home Page - online discussion group on FM
  • Diagram - FM Tender Points
  • Fibromyalgia: The basicsWilliam S. Middleton VA Hospital, USA
  • Fibromyalgia: Helpful Behavioural ChangesWilliam S. Middleton VA Hospital, USA
  • A randomized, controlled trial of exercise and education for individuals with fibromyalgia.
  • Fibromyalgia
  • FM article - Australian Association of Musculoskeletal Medicine
  • Consumer Education Scan on Women's health issues
  • Literature Review - Behavioural Guidelines for Adjusting to Medical Conditions
  • Mayo Foundation for Medical Education and Research
  • National Library of Medicine (Ed).   Medline Plus Health Information
  • Dr. Cheney's Basic Treatment Plan for Chronic Fatigue Syndrome
  • AccuMed Systems Inc. - telemedicine company announces a test (cardio-pulmonary exercise test) that helps Fibromyalgia or Chronic Fatigue patients document their disability
  • Chronic Fatigue Syndrome & Fibromyalgia Information Exchange Forum - excellent ( ! ) site containing many ME/CFS and FM resources
  • When life hurts - physicians, lawyers - conference report
  • CFS Reference Material

    An Online C.M.E. on ME/CFS, a publication of the CDC and U.S. Department of Health and Human Services.   This online CME is provided under agreement with the USA's CFIDS association.

  • 30 Page extract of the CFS Concensus Guidelines - on the 'co-cure' CFS/ME web site
  • Co-cure - Update Page for Clinical Theory and Practice
  • USA info - CDC & CFIDS Assn : Assessment Tools
  • CFIDS Assn's special newsletter - a review of the CFS frontier
  • USA info - CDC & CFIDS Assn : Facts Sheets, Pocket Guide
  • A Library index composed by the M. E. Society of Edmonton (CFS)
  • Guidance on the management of CFS/M.E.
    This guide, based on the Chief Medical Officer's report, has been produced by the U.K.'s Action for M.E. to assist GPs in the assessment and management of patients with CFS/M.E.
  • M.E.   A Guide to the Symptoms, Cause, and Treatment
  • Guidance on the management of CFS/M.E.
    Interventions for the Treatment and Management of Chronic Fatigue Syndrome, a systematic review, 2001
  • Guidance on the management of CFS/M.E.
    Development of the chronic fatigue syndrome in severely fatigued employees: predictors of outcome in the Maastricht cohort study
  • Guidance on the management of CFS/M.E.
    Childhood predictors of self reported chronic fatigue syndrome/myalgic encephalomyelitis in adults: national birth cohort study
  • Your Child & M.E.
  • Physiological Aspects of Chronic Fatigue Syndrome
  • US Center for Disease Control - CFS information
  • Chronic fatigue syndrome information for medical doctors
  • CFS treatment info for medical doctors
  • ME Research, by the ME BC association
  • The Prevalence of CFS: A Review of Efforts --Past & Present
  • CFS, history traced, US National Institutes of Health
  • A Review of different countries and the illness
  • Fibromyalgia, Chronic Fatigue Syndrome & Other Medical Information - Lois Randall's web site
  • Chronic Fatigue Syndrome - many useful links to resources
  • The Cheney Clinic on Chronic Fatigue Syndrome
  • Chronic Fatigue Syndrome
  • AccuMed Systems Inc. - telemedicine company announces a test (cardio-pulmonary exercise test) that helps Fibromyalgia or Chronic Fatigue patients document their disability
  • Chronic Fatigue Syndrome & Fibromyalgia Information Exchange Forum - excellent ( ! ) site containing many ME/CFS and FM resources
  • Chronic Fatigue Study Fuels Debate on Name Change - a list of links related to the proposal to change the name Chronic Fatigue Syndrome
     

     

     

     

     
  • For nurses and other practitioners interested in pain issues:

    Canadian Nurses' Pain Issues Working Group (CNPIWG)
    Lynne E. Young RN PhD

    In the late 1980's innovative technologies, medications, and organizational strategies for pain management opened the door to a new era in which pain management professionals believed pain could be all but eradicated, particularly in acute care settings. Now some 15 years later, this dream has not been realized. Rather, ineffective pain management is prevalent across health care settings including - hospitals, long term care settings, community, and at the interface between these settings.

    Ineffective pain management casts a dark shadow over the health experience of patients and families, placing patients at increased risk for morbidity and mortality. With a view to facing the often heartbreaking and always distressing issue of ineffective pain management, a group of about 20 BC nurses met in June 2004. The group rapidly expanded beyond the BC borders and is now called the Canadian Nurses' Pain Issues Working Group (CNPIWG). We now have almost 120 members representing 9 provinces and 1 territory, and we are growing!

    A key strategy of our work is to partner with groups and organizations interested in advancing the agenda of pain management. Much to our delight, FM-CFS Canada approached us to work with them to open a space between their work and ours. FM-CFS Canada extended, and we accepted, an invitation to post our newsletters on the FM-CFS Website.

  • Canadian Nurses' Pain Issues Working Group (CNPIWG) - newsletter - August 2005
  • Canadian Nurses' Pain Issues Working Group (CNPIWG) - newsletter - October 2005
  • Canadian Nurses' Pain Issues Working Group (CNPIWG) - newsletter - February 2006
  • Canadian Nurses' Pain Issues Working Group (CNPIWG) - newsletter - May 2006
     
  • DISCLAIMER:
    The FM-CFS Canada (Compassion in Action) website contains general information only. A qualified healthcare professional should be consulted before making medical decisions. FM-CFS Canada (Compassion in Action) makes efforts to ensure the accuracy and reliability of the information that appears on its website but cannot guarantee that it is error free or complete. FM-CFS Canada (Compassion in Action) does not endorse any product, treatment or therapy; neither does it evaluate the quality of services operated by other organizations.

    Links to Other Sites
    The FM-CFS Canada (Compassion in Action) website has links to other websites that are not under its control; Compassion in Action is not responsible for the contents of any linked website, or any link contained in a linked website, or any changes or updates to such websites. The inclusion of any link does not imply endorsement by FM-CFS Canada (Compassion in Action) of that website.